This. Again.

Even if you know bad news is coming, when it is about your children, it slams your gut like a Mike Tyson uppercut.

We knew going into yesterday’s six-month checkup it was likely doctors would determine Tyson needed another open-heart surgery. Still, hearing the words made me instantly sick to my stomach.

And, to make it worse, the doctor stressed that even with successful surgery, Tyson might have to live the rest of his life with a pacemaker.

I’m angry at the world today.

My precious 2 ½-year-old son, a shy, sweet boy who enjoys counting and weekend sleepovers in his sister’s room, doesn’t deserve the havoc wreaked on his life by the randomness of a congenital heart defect.

I should count my blessings. I have a wonderful wife and two smart, adorable children. I could not have asked for a better mate and mother. My daughter is a spitfire of a 4-year-old, a smart and sassy diva always searching for an audience for her latest song, story or other imaginative theater. My son is a reserved, introspective child who can play by himself for hours, content in solving a puzzle or organizing and counting his toys.

My wife and I both have good, fairly secure jobs. Six months ago, we bought our dream home.

I came to this wonderful life late, and it is truly more than I deserve given my youthful transgressions.

I also know there are millions of parents around the world, and many we personally know, who would rip out their own heart if it gave their child a shot at an operation that would allow them to live a “normal” life.  We are reminded of this every time we visit Children’s Hospital.

I know I should be grateful. But dammit, I am angry.

I don’t want my son on that operating table again.

I don’t want his life hanging in the balance again.

We have been through this before. For those who don’t know, my son was born with Double Outlet, Right Ventricle. To simplify, the anatomy of his heart wasn’t right. He had to be delivered at a hospital close to Children’s Hospital – with a team of emergency medical personnel on hand – so he could quickly be whisked away to the hospital’s cardiac unit.

He spent a few weeks there and eventually went home to get stronger, so he could prepare for his operation. We fed him through a tube that went into his nose. Slated to undergo a corrective surgery at six months, he couldn’t make it that long. He was two months old when they first opened up his tiny chest.

  

He survived.

We continued to feed him through a tube. Eventually, he gained enough weight to make it onto the growth chart. The tube came out. He continues to eat pretty well. At last measure, he was in the fourth percentile for weight! We take all the milestones we can get.

  

Other than the jagged scar on his chest, you would never know he has issues. He plays like any other 2 year old. He is small for his age. His speech is a little behind. But honestly, you would never know.

He has come a long way. He is a fighter.

For the rest of his life, he will have regular cardiac checkups. At his checkup last May, they told us that the natural hole in his heart – something they would normally want to close, but in his case they used to route blood flow in the initial repair of his heart – was closing on its own. Eventually, they said, he would probably need another operation. But it is risky, so let’s wait as long as we can.
 

That wait lasted six months. He will have the surgery after the holidays.

The added news is that the repair site is near the natural electrical pathways of the heart. There is a chance that the “fix” will screw with the pathways. If so, he will wear a pacemaker the rest of his life. They will implant it near the bottom of his rib cage and, as he grows, move it to his chest.

My wife asked the doctor how that would impact his life.

No contact sports. Other inconveniences. But a chance at a full life.

It just adds to the list of our worries, which total three big ones right now:

• His survival.
• The need for a pacemaker.
• The chance that these repair sites continue to close and he has to go through this every couple of years.
•  

Our one saving grace: Cincinnati Children’s Hospital. The third best children’s hospital in the nation.
 

He will have the same surgeon as last time. The gentle giant, Roosevelt Bryant III. He has already saved his life once. I know he’ll want to finish the job.

Probably the hardest thing I have ever done in my life was passing my little two-month old boy off for surgery two years ago, not knowing if I would get him back.

Now I have to do it again.

We adults know life knocks you on your ass every now and then. It is a shame my son has to learn it so often at such a young age.

My wife bought Tyson a t-shirt that says “Some Day, I Will Move Mountains.”

It is my favorite shirt.

I hope he gets the chance.

Daddy Humbug!

Call me Grinch.

I’m not a holiday guy. Never have been.

If not for my wife, my kids would have a far different holiday experience, one that resembled Whoville before the Grinch grew his heart.

As they get older, Sydney and Tyson will no doubt add to their nightly prayers, “Thank you God for sending us a mommy who gets excited about holidays.”

I don’t know when or where my ambivalence for holidays started. Sometime after I graduated college, I decided wrapping gifts was a waste of both time and money. Why spend so much effort for something that will be torn away in seconds?

So every year, I showed up at mom’s house with a garbage bag filled with toys and just handed them one by one to my mom, siblings and nephews.

“Merry Christmas! God bless us every one!”

It is not that I hate holidays. Well, maybe Halloween. Who likes dressing up in a costume and spending all night barely able to move?

As I grew older, I found ways to be comfortable during Halloween. Throw on a University of Cincinnati sweatshirt and a pair of shorts and carry around a basketball and pair of handcuffs – these were the Huggins years – and you are a UC Bearcats basketball player.

So I now have a rule on Halloween. If I am going to wear a costume, it actually has to be more comfortable than if I were not wearing a costume. It is a hard goal to meet, but as long as there are shorts and sweatpants, it is a possibility.

I do like Thanksgiving. You get to eat a lot and watch football. That is like any fall Saturday or Sunday for me.

But the rest – ambivalence. New Year’s Eve hasn’t been fun since I was 30 and Dick Clark rocked like a 65-year-old. Now, I rarely make it to the ball drop.

Memorial Day, Fourth of July, Labor Day – nice to have a day off work.

Christmas? Seems like a lot of work.

But now I have kids. And they want – no, they deserve – a nice Christmas.

That’s where mom comes in.

Since dad can’t seem to get his act together, she goes into high gear. First, there is the Elf on the Shelf. I never heard of this until a couple of years ago. It is a jolly way of scaring your kids into behaving.

When we were young, mom or dad used to say, “You better behave. Santa is watching.” Now, Santa has his own little spy who lives in your house the whole month of December and flies back to the north pole each night to report on the behavior of the household children.

Has anyone over 40 ever heard of this? I swear there was no Elf on the Shelf when we were kids. I think it has to do with the never-ending commercialization of Christmas. Sell an elf and the book about the elf.  Pretty soon, there will be reason for him to make his arrival around Labor Day as the never-ending Christmas season continues to bleed earlier and earlier on the calendar.

My dental hygienist said to me the other day, while not-so-carefully rooting through my mouth with a very sharp tool, “I’m thinking about doing the Elf on the Shelf this year. But it seems like a lot of work.” I almost choked to death on my own gum blood trying to gag out an emphatic “It is!”

Every night, my wife has to move that elf to a new place so the kids can find it again the next morning. Not a real difficult task, but try to remember to do anything every night. More than once, she has nervously spelled a “H-I-D-E E-L-F” to me as we are getting the children ready for pre-school in the morning, sending me scrambling down the stairs.

But the kids love it. They are like their mother.  They love everything about Christmas.

She has already hosted a Christmas cookie trading party. She has the house decorated in red and green. Every bedtime story in December must be a Christmas book.

Stockings are hung by the chimney with care, in hopes that lazy hubby will get off his derriere.

And the centerpiece of our holiday? The family Christmas tree.

I have managed to cut corners on the tree. We decided to start out with a fake one right from the get-go, so they would never know the difference.

All their life, they are going to have an artificial tree. Yes, this means they will never know the joy of trampling through the snow, searching the woods for the perfect evergreen, methodically checking for a bird’s nest – they’re good luck! – and measuring for a height that will fill the room without hitting the ceiling. (Or going to Home Depot, paying $20 and dragging a bundled, bedraggled tree to the back of the SUV).

I can live with that.

Our artificial tree is beautiful, a 7 ½ foot Martha Stewart given to me by a friend that would retail for about $300 at a store. The kids love it. The wife loves decorating it. I love not having to do anything. A win, win, win.

They also love Christmas lights. The chirping at dad has begun. “The neighbors have pretty lights, why can’t we?” Or the wife: “I don’t like colored lights, but it would be nice to have white ones.”

I try to drown it out. While they merrily think of the joy Christmas lights would bring, I picture myself falling off a ladder, ala Chevy Chase.

My wife finally conceded the other day, telling the children “the only way we are going to have lights is if mommy hangs them.”

Sydney and Tyson both turned to stare at me like I was the Grinch.

Straight Out of TV Hell

One of the rare times they are not pestering mom and dad.

Have you ever tried to watch a movie with a 4 year old and 2 year old in the same house?

Check that. Have you ever tried to watch even a half-hour television show with the children bouncing around the house?

Thank God for DVR. If I couldn’t record and then stop and start a television show a million times, I don’t know if I would ever watch anything from beginning to end. I’d forever be trapped in a loop of NCIS crimes that occur but never get solved.

When I first discovered DVR, I thought its main use would be to prevent fights between my wife and I. Suddenly, I had this tremendous device that allowed me to stop whatever I was watching and look intent and concerned while my wife babbled on about her day. When she was done, I picked right back up where I left off. Genius!

But now that I have kids, the DVR experience has reached a whole new level. With approximately 36 interruptions every time my wife and I sit down to watch a show, the DVR is the only thing that allows me to stay up on the disturbingly new macabre cases Criminal Minds stars must solve.

As soon as we sit in front of the TV, chaos ensues. This is when the kids choose to fight. Or cry. Or need something. Or ask questions.  

It is “Mommy, can I have a drink?” or “Daddy, listen to this new song I made up,” every five minutes. Or, like clockwork, the dreaded, “Daddd--yyyy, coommmeee wipe me.”

Yes, she does it in a sing-song way.

Last night, in the middle of a Criminal Minds playback, Tyson, who isn’t potty trained and shows no interest, asked if he could pee on the potty. This necessitated in a 15-minute break from the show to watch Tyson NOT pee because he really never intended to. It was all part of the master plan the kids have to ensure mommy and daddy don’t stay current on The Middle and The Goldbergs.

Mind you, we actually only try to watch a show three or four times a week. Ninety percent of the time, both televisions we have downstairs are turned to Team Umizoomi or Little Charmers or some kid’s movie on Apple TV while we do parent things.

I get home about 5:30-6 p.m. Bed time for the kids is, hopefully, 9. I’m usually exhausted and ready to go down at 10. In between, dinner, baths, bedtimes stories, packing backpacks for the next day, etc. TV usually has to wait until the weekends or that rare weeknight when it all comes together just right.  

I currently have about 37 hours of taped shows on my DVR. They hang over my head like a guillotine. Will I max out without watching them and have to start erasing for new tapings?


Happened a lot on Time Warner. But Direct TV gives me more storage. Crossing my fingers.

My brother recently gave us some black-market gadget that allows me to watch pretty much every movie ever made. I can get movies that are in the theater right now! They may have Chinese subtitles or the sound may be a half-second off from the visual, but I get to watch Straight Out of Compton without going straight out of my house.


That is a nice treat for a couple who has not gone to a movie theater since Sydney emerged from Brooke’s birth canal four years ago.

How many shows have I watched? Well, I got half way through Black Mass. Did the FBI ever catch that Whitey Bulger guy?

And in Straight Out of Compton, I got to the point where NWA hit the airwaves with Fuck The Police.


That can’t go well for them.

That’s it. Two half movies. Not 2 and a half movies. Two HALF movies.

My wife, on a whim, picked up a RedBox movie while at the grocery the other day. We literally had to order our two children into the other room every five minutes in an attempt to get through it. We got about three-quarters of the way through and the DVD had a glitch, not allowing us to go further.

DAMN YOU, REDBOX!

That makes three movies in the past month where we have no endings.

When we moved into the new house, I signed up for Direct TV. They gave me a package with free HBO and Cinemax for three months. When that was up, I called to cancel. The customer service guy offered to increase my access to movie channels for the same price.

I laughed. More movies I can’t watch? Yeah, I’ll pass buddy.

At some point, these kids are going to be more independent and willing to play on their own. At least Tyson will. Sydney seems to need an audience for everything.

If they ever reach that point, I plan on catching up on a decade’s worth of movies and television.

Until then, if you see me, try not to dish out any spoilers on The Good Wife.