Wednesday, March 30, 2016

Trying not to Raise a Kardashian



                                                            Nothing but sweetness, right?



How do you ensure your kid grows up to be a “nice” person?

It is not a rhetorical question – I hope you will give me your best advice.

My children are very different. Sydney is loud, outgoing, brash. Tyson is reserved, quiet, maybe even a little timid.

We met the Easter Bunny last weekend. Sydney ran to him and hugged him like he was her best friend. Tyson clung to my legs.

A neighbor whom we don’t know walked her dog by our house the other day. Sydney ran to the end of the driveway and started a conversation with her like they were old friends.

Tyson clung to my legs.

Their personalities, so far, are completely different. They are very stereotypical: Sydney is verbal and very smart with vocabulary. Tyson is quiet but is much better than his sister at math, puzzles and similar activities.

Their differences are evident in other ways, too, and that is where I am concerned. Take Christmas for example. Sydney tore through her presents like the Tasmanian Devil. As soon as she had the wrapping off one, she was reaching for another.

Tyson still had unopened toys weeks later. If he opened something he liked, he would play with it for the rest of the day, not worried about what he could have, but content with what he had.

You see where I am going here?

I have said it many times before: If someone were to offer Tyson a balloon, he would ask for one for his sister. He is THAT nice and thoughtful.

On the other hand, if Sydney saw someone offer Tyson a balloon, she would run up and steal it for herself.

She is THAT kind of kid.

This isn’t a learned behavior. Some of it might be from being the first born and having all the attention for nearly two years, but I think she was born like this.

Ask Tyson to help clean the room, he is on it. Ask Sydney to help and you get three hours of bargaining and procrastinating and outright defiance.

All I have to do to get Tyson to go to bed is set my phone timer to go off, no matter what time it is. He knows that when the timer goes off, he has to go to bed and he starts heading that way.

The timer is like the bell at a boxing match for Sydney. Time to start the verbal sparring in order to squeeze in another hour or so of play time. She comes out jabbing like Muhammad Ali.

Before you say, “You can’t let her get away with these things,” understand that I know that and I don’t. But my point is, I want her to act the right way without the threat, or distribution, of punishment.

Also, I have known kids who grew up in very strict environments, where they were afraid to step out of line or challenge their parents on anything. Sometimes that doesn’t work out so well, either. I’m not trying to turn my child into a submissive robot or someone who rebels with drugs or other felonious behavior to deal with overbearing parents.

She’ll get her fair share of groundings, or worse. But I don’t believe I can punish someone into being a good person. She has to come into that on her own.
  
More than once, my wife and I have looked at each other and asked, “How do we make her understand how important this is?”

I had friends visiting this summer and they have two older children who are respectful and very well behaved. I asked my buddy how he and his wife did it, and his answer was vague. Really, they simply tried to steer their children between right and wrong and hoped for the best. So far, it has worked. Or they just got lucky. Or both.

I asked another friend the same thing a few weekends ago. He and his wife have raised three daughters who are all on their own and doing very well as adults. His answer was much the same.

But how much of it is luck? I know siblings who grew up in the same environment. One is an empathetic soul who leads a successful life, while the other is a pathological liar who scams everyone in their path.

Some of it has to be the luck of the draw, right?
  
I spend a great deal of time trying to keep my kids safe. Sydney is so oblivious, she wouldn’t see a car coming until the Ford emblem was implanted on her head. Tyson would play football on our flight of stairs if I let him. They’d both put coins or balls or other choke-able items in their mouth if we weren’t watching them 24/7.

Safety is always the number one concern. It won’t change as they get older. I’ll worry about them experimenting with drugs or driving drunk or hanging out with some knucklehead who thinks Interstate 71 is the Indianapolis Motor Speedway.

A lot of energy is spent on keeping them safe. Then, you worry about their intellect and how smart they might become. You spend hours reading books to them, playing online learning games and ensuring they are watching educational TV.

At some point, I am sapped of parental energy. Yet, there is still a mountain to climb: turning your kid into a “nice” person. Someone who respects others, cares about others and is not as self-absorbed as Kim Kardashian.

But then again, Kim’s doing ok. Maybe the selfie-centric way of life is the way of the future?

Screech!!!! Hold the phone. Pardon my interruption!

While I was writing this, my daughter just came up to me and gave me a nickle she had found on the floor somewhere in the house. Instead of keeping it, she gave it to me in “case you need to buy something for yourself.”

Not buy something for HER. Buy something for ME. What a quantum leap forward! Perhaps not all is lost.

Maybe 4 years old is a little too early to consign the fate of "incorrigible" to a child. Maybe I am worrying for no reason.

But just in case, feel free to send advice my way. I’ll be the clueless dad in the corner.   

Thursday, February 18, 2016

Blessed -- In More Ways Than One


The second I saw Tyson post surgery, I knew things were going to be OK.

After his first surgery, when he was only 2 months old, our heightened anxiety turned to smiles as the surgeon explained how well things had gone. We were so happy, we took pictures with him to celebrate.

But when we arrived at Tyson’s room, the site of his broken body took my breath away. I stepped back out of the room to compose myself.

He actually looked dead to me. He was purple. His eyes rolled back into his head. He had a million wires connected to his abnormally still body.

So I prepared myself for a horror show as we took the elevator to the sixth floor last Friday to see our son after Dr. Roosevelt Bryant once again worked his magic on Tyson’s heart.

But the 2-year-old Tyson fared far better than the 2-month-old Tyson. This time, he looked more like his normal self, albeit with a 6-inch bandage holding his chest together and several wires monitoring his 25-pound body for post-surgical complications.

                                                                    First surgery vs. second surgery
Ecstatic is an understatement. We are amazed how well the surgery went and how quickly he rebounded.

I try not to make a bigger deal out of this than it is. I struggle with sharing fears of disasters that never materialize. I know other people have walked this path and still others walk more difficult journeys.

But damn, when it is your kid, it is your whole world. If you are ever going to make a big deal out of something – good or bad -- it is going to be your child.

So yes, there was, in fact,  a chance he wouldn’t make it through the surgery. Anytime you are being kept alive by a machine, things can go wrong. So, however small it might have been, there was a chance.

And, they’d told us there was a possibility – anywhere from 10 to 25 percent – that the surgery would screw with the electropaths of his heart and he would come out needing a permanent pacemaker.

But even at 25 percent, there was still a 75 percent chance he wouldn’t. So was I dwelling on the negative and too strongly communicating that to others?

After all, the surgeons at Cincinnati Children’s Hospital Medical Center do about 300 open-heart procedures a year. They do far fewer Double Outlet Right Ventricle repairs such as Tyson’s, but, still, they clearly have experience that makes these procedures almost routine.

I don’t know. Maybe we made too big a deal of it. All I can say is, when it is your child, you tend to dwell on the negatives. The percentages become a blur of what ifs.

When my wife and I handed my boy over to the surgical team last Friday, we were both in tears. Whatever the chance, if there is even one iota of a possibility that you will not see your child alive again, it is almost too much to bear.

But this is Cincinnati Children’s, the third best children’s hospital in the country. The surgical team, from our gentle-giant surgeon, Dr. Bryant, to his assistant, Dr. Katherine Walters, to the anesthesiologists and the rest, worked a small miracle in our little boy.

An expected six-hour surgery became only four hours. Once they opened him up, they saw there was no need to fix Tyson’s original patch. The work Dr. Bryant had performed two years ago was still solid. They needed to only dissect some membrane and muscle and re-route a pathway to reduce pressure and even out blood flow.

This reduced recovery time. They were practically pushing us out the door before he was off the operating table. They talked of getting him up and moving the day after surgery. They were aggressive in discussing going home, despite our protests. We were concerned about his pain and elevated heart rate. He wasn’t eating or drinking. He was barely talking. He seemed angry at us, or depressed.

They were certain he would do better at home.

Turns out, they were right. One day after getting home, Tyson appeared to be his normal self. He is not sleeping well, still has some pain and is moving a lot slower, but he appears well on the way to recovery. In fact, we are already concerned about how we will keep him from running and roughhousing for the next six weeks as his chest heals.

For now, he will have regular visits to his cardiologist, Dr. Thomas Kimball, until we know he is fully recovered from the surgery. Then, we will get back into the routine of cardiac visits every six months to monitor his heart, each time hoping we don’t get told he will need another surgery.
                                                                             Dr. Roosevelt Bryant
Tyson is the kind of kid who, if someone gave him a balloon to play with, he would ask for one for his sister. He is an incredibly kind-hearted and quiet boy who is methodical and contemplative. He quietly plays with puzzles for hours. He has fun taking things out of a basket, arranging them, counting them and then putting them back.

He is meek. But his demeanor hides a ferociousness. I saw a nurse come in and take a blood sample from him. He never flinched, despite the fact she had to move the needle around to get enough blood.

During the whole pre-op, surgery and post-op, I saw him cry only on one day, the day after surgery. He was in a lot of pain and several times during the day, he whimpered. Through all of the rest, he was stoic.

As my favorite shirt of his says, "SOME DAY, I AM GOING TO MOVE MOUNTAINS." He will. He might even become a heart surgeon.

Some day, we are going to tell him about all the support he had going into that operating room.  We are collecting the pictures and messages and thoughts and prayers so he can some day know how many people had his back.

Those messages, thoughts, prayers and karma you sent our way over the last few weeks were like a wave carrying us through.  

Brooke’s co-workers made and sold shirts on Tyson’s behalf. Mine took a staff picture dressed in red in support. A fellow Heart Mom who sadly lost her child a few weeks after his first birthday brought us lunch in the waiting room as we anxiously yearned for some positive news on Tyson. The good friend who married us brought dinner that night. Others cooked for us when we got home. One friend of Brooke’s made us a couple weeks’ worth of dinners!

Both of our mothers came to town for weeks to help as needed. My daughter’s pre-school class made cards for Tyson, and the sixth-grade class at Brooke’s school each wrote personal messages of support to her. Some made you laugh out loud. Others made you cry at how caring and sensitive kids can be.  

And, the social media! It helped that Tyson's surgery got postponed to, of all things, Congenital Heart Defect Week. It provided the opportunity to spread even more awareness. "I'm a Tyson Supporter" symbols were everywhere, as were dozens of pictures of people wearing supporter shirts. Our story was being shared with lists of people we didn't know and then we began hearing from complete strangers who wished us well and told us they were in our corner.

If it is possible to feel both all alone and that you have an army of support behind you, that is where we found ourselves last Friday morning when we did that incredibly difficult hand off.

The byproduct of perhaps worrying too much, of maybe dwelling on the negatives and what ifs in too many conversations, of telling our story to too many people, was that a legion of support formed around us.

I’ll take that.  Every day.