Let's roll!

Tomorrow’s the big day.

I’m nervous.

I’ve been through this before, but if you remember, during my first experience, my blood pressure soared so high my nose spurted blood all over the operating room.

I’m not exactly Mr. Calm in this situation.

Add in the concern over my son’s heart and I’m probably going to be a mess. And when they place that child in the specially-designed neonatal ambulance to transport him to Children’s Hospital, I’ll probably be a blubbery mess.

Actually, it will happen before that when they let my wife hold him for a few minutes and then whisk him away. My heart will hurt along with hers.

Even tough guys cry, right?

We’ve done what we can to prepare for this. My mom is here for a month if we need her. My mother-in-law comes for more than a week.

Yes, my head is going to explode.

No seriously, I’m glad to have them. They will be a HUGE help. Big thanks to my brother, Rich, who not only funded my mother’s stay, but purchased her a decent ride to make the trip.  

My father-in-law is going to be here for a few days, too.  Maybe I can get him to mow the grass.

Guys are helpless in these situations, so we do what we do. If you are local and have any household projects, let me know. I can send him your way.  

Plenty of friends have volunteered to help with Sydney and the dogs, if needed. Thanks to EVERYONE for the offers of help and well wishes. We are truly blessed with great friends and family.

As a brave man said on 9-11, “Let’s roll!”

I’m anxious to know what we are facing. I want to get down to the battle.

Doctors are fairly certain he’ll be fine coming out of the womb. They’ll make an assessment right away to see if he needs surgery. If not, they’ll put him on medicine that will keep him alive until Tuesday, when all the big-wig doctors will meet at Children’s Hospital and make a decision on how to proceed. He’ll either have surgery that week, or they will wait several months until he is stronger. It will depend on the severity of his deformities and where they are located.

If you’re keeping track, there are three potential points for surgery: out of the womb, within the first week or so, and six to eight months in. One thing for sure: he will have to have at least one open-heart surgery at some point.

Regardless of the decision, we have no idea how long his first stay in the hospital will be. He will be monitored for some time before he can come home. So it is difficult to plan right now.

We just want to whip this thing and get life back to normal as soon as possible.

I’ll keep you all updated via this blog and Facebook with posts and pictures.

By now, you know writing is therapeutic for me. Here’s what I have come up with for tomorrow:

Tyson

He has his father’s blood
A fighter’s blood
Blood so furious it rejuvenates the fallen

He has his mother’s dreams
A believer’s dreams
Dreams so vivid they wake the dead

He has his sister’s smile
An innocent’s smile
A smile so brilliant it lights the dark

He has his family’s love
An everlasting love
Love so strong it touches the soul

He has his community’s hope
An overwhelming hope
Hope so absolute it overcomes all doubt

He has his inner strength
A warrior’s strength
Strength so powerful it heals the broken

Life Knocks You on Your Ass

My son won’t have a normal start to life.

Minutes after leaving the womb, he’ll be whisked away to a waiting ambulance that will transport his tiny, fragile body several blocks away to one of the best children’s hospitals in the world. A spot in the Neonatal Intensive Care Unit will be waiting.

There is a 70 percent chance he will need surgery immediately. There is a 100 percent chance he will need a second surgery within months.

And that is the best we can hope for.

I still am not to the point where I can say or write this without tears welling up.

I won’t glaze your eyes with the medical jargon that even I don’t understand. He is among the one percent of children who are born with heart defects. In fact, the odds are much smaller than one percent on some his defects: hole in his heart, two valves coming from the same spot and performing the same function, and narrowed arteries in two places.

My son is broken.

I ache for him to be fixed.

Doctors say it is possible. The surgery that is likely upon the day he arrives in this world can fix the narrowed artery at the top of his heart. The second surgery, which will definitely take place, will fix the hole and the two valves.

The other narrowing, which they are monitoring, may not be fixable. Brooke and I heard different things from the doctor. We were both so stunned at the news, I’m not sure either of us heard anything completely right. Brooke thinks it is fixable. This is one argument I hope she wins.

What I know for certain is he will spend many days in the hospital and undergo at least one open-heart surgery. More days in the hospital to recover, and possible follow-up surgeries. Then he will spend the rest of his life being monitored by a cardiologist.

But, if everything goes right, if the fixes take and the other narrowed artery heals, he could be a fairly normal kid.

I’ll take it. I’d love if he is able to play competitive sports and run freely, without a care, with his dog and neighborhood friends.

But mostly, I want him to be alive and healthy enough to have a decent quality of life.

I was angry when we got the news. I’ve spent many days since telling myself what a good life I have.

I grew up poor, but loved. And being poor was a positive. It sharpened me, made me a fighter. I would not be the person I am, or achieved what I have, without that foundation.

I had more fun in my 20s and 30s than the law should permit. In my 40s, I met and married a beautiful woman with a heart so tender saints move aside for her. Seventeen months ago, I was blessed with the best thing to ever happen to me, a beautiful daughter who is smarter than her age and as fun-loving as they come.

No one I have ever been close to has been murdered or died tragically young.  I’ve lost grandparents to debilitating diseases, but only after they’d lived long lives and showered me with love. I lost my dad to leukemia, but I had him with me into his 60s.

As a poker player, I understand skill is trumped by luck. Sometimes the odds are against you. This is simply my time for bad luck. I’ve had my good streak; now I have a challenge to overcome.

Or it could be karma. Lord knows I have done enough bad things and hurt more than a few people in my life.

But what about my wife, a special education teacher who takes care of the world’s most vulnerable? A selfless woman who lifts up everyone around her?

She doesn’t deserve this bullshit.

Neither does my innocent little son, who will be only minutes into this world when faced with life-or-death situations.

Fuck you, karma.

I don’t know if I am a good dad. I try my best, but without my wife to prop me up, I’d probably be lost. I’m better than my dad, but I am nowhere near the super dads I know, like my brother or a stay-at-home friend, Rory Glynn.  

But I know I am a LOVING dad. If love were water, a titanic swell would swallow Sydney daily.

If love can get us through, that little boy has a really good chance.

I’m glad Sydney is not old enough to know what is going on. A time that should be joyous and full of anticipation has turned to depression and nervousness.

I’m not an optimist or a pessimist. I am a realist. That means I study the situation, understand the odds and outcomes, hope for the best and prepare for the worst.

We all know what the worst is here. I’ll be prepared.

My wife is another story. Being prepared is cheating on the notion that our little boy will be anything but fine. Mothers don’t cheat their kids.

I’m worried about her. Her heart will break when they whisk that boy blocks away to Cincinnati Children’s Hospital Medical Center. She has to stay behind for three days, recovering from a C-section. She won’t be there for that first surgery, if needed. Normal breast feeding and bonding will be difficult.

There will be two people in this family with broken hearts.

No, make that three.